Tuesday with a Twist

Hello my favorite people!

I wish I could say I have some good news but unfortunately this week has been kind of rough so far. I will continue with my Tuesday Themesday next week, but this post is mainly acting as an update to all my followers.

A couple days ago I started to get very nauseous and started cramping in the same spot I used to get cramps from. I figured because my body was very immuno-compromised, that I probably picked something up and it was affecting my health. I kind of put it off for a couple days. Laid low. Didn't really leave the house except to go to the library and Walgreens. Didn't want to chance anything quite yet. My grandparents came in town on Saturday to get me "out of the house", as they had rented a condo on the beach. I went with them on Saturday night and continued my schedule as always. I started to feel worse on Sunday and pretty much stayed in bed the whole day. My grandmother wanted me to call the doctor, but I wanted to wait until I saw my home health nurse on Monday morning to see what she suggested. Monday morning I woke up and right before I unplugged from my TPN for the day, I got violently ill. But I felt better. As most people do after that happens. I saw my home health nurse and she listened to my bowel sounds and couldn't hear anything, plus I had a high heart rate. So she suggested I go to the ER immediately. She called both my GI doctors and they suggested I go to Gainesville because that's where my specialist and my surgeon were.

So off we went. We drove to the ER, and it was a madhouse. There were 42 people ahead of me. They said if I promised to stay, they would order the necessary tests and have me do them while waiting so that when I got back there, they would pretty much already have a plan. So they did bloodwork and a urinalysis and a basic x-ray and then sent me to this more secluded area in the cancer hospital to keep me away from all the contagious people. They knew I was immuno-compromised so they gave me a sheet, a mask, and put it in my file where to find me when they were ready. They did a CT scan next, and then 7 HOURS later, I finally got a room. They hooked me up to the fluids and went to retrieve the doctor. My grandmother left the room to go to the car, and in those five minutes, I got violently ill again. Thank goodness I had a sick bag. So they immediately gave me some nausea medicine and then the doctor came in to tell me the plan. I had a very large amount of fluid in my digestive tract. Fluid that had basically been sitting there for a while. It had all accumulated from the TPN waste, daily body waste, etc. And it didn't help that I was on so many immunosuppressants. They decided the best route was a conservative approach.

They then inserted another tube. This time an NG tube, which is thicker than the one I had before. It was traumatic to say the least. They gave me some pain medicine and left me to be suctioned and get some rest. Not long after that, they transferred me to an observation ward, which is basically ten people in one room separated by curtains. The plan is basically the same. I have to keep the tube until the fluids slow that are coming out of me. And trust me, it's a lot. I honestly don't know where it has all been sitting. I'm a very tiny person. I'm on pain and nausea medicines as needed, and then they will add the TPN back into my nightly routine once the fluids slow. So it is basically just a waiting game again. Not really much to do, but I am getting the attention I need so I am okay with it.

I do have a bit of good news, depending on how you look at it.

I have a surgery date!!

As of right now, I will have surgery on April 24th! If everything goes as planned, that's when it will be! Please pray that this happens, especially after this little setback.

So there it is. Probably not the blog post you were expecting, but I promised to keep you updated.

Hope you all have a great week, and if I don't see you on Friday, at least you know why!

XOXO,
Kayleigh