Hello my wonderful followers!
As my grandmother just told me, apparently some of you have been on pins and needles waiting for an update, so I am finally here to hopefully un-pin and un-needle you. And yes, it really is me this time! Kayleigh, I mean! Thank you to my mom for keeping everyone updated while I was unable to, but I'm back and ready for action!
So I guess I should start with a few weeks ago, right after my mom updated everyone.
After that post, I was sent to the surgical floor again to join all my favorite nurses. After one night on that floor, the doctors discharged me. Before they let me go, I had meetings with a ton of home health people and case workers to prepare me to go home. Then they decided to finish my antibiotics and then give me my Remicade infusion because I was already a few days late. They finished it off with one more antibiotic and then I flew the coop. I ran out of there as quickly as possible, said peace out to all my nurses and PCAs from along the way, and got in the car for the two hour drive home. After we got home, my home health nurse came to hook me up to my nightly TPN and then I went to bed. Not much happened that night. This was two weeks ago today.
For the next week, my mom stayed with me to try and keep me busy. I had to be constantly hooked up to an antibiotic. It looked like a squeeze lemon juice container. It was run by negative pressure and I wore it like a leash for a full week. Then at 6pm every night I would hook up to another antibiotic for an hour. Then the TPN at night. It was quite the week. I also still had the drain on my right hip. After the week was almost up, we realized the drain was leaking out the sides on my skin. We called the doctor, and they scheduled a CT scan and appointment for the next morning. We went and I had two CTs done (because the doctor ordered the wrong one the first time). The CT came back and showed there was no fluid in the cavity that the drain was in. Which means it did its job. So they removed it and I had no more drains! Yay for being able to sleep on my sides! It really is the best. The CT also showed that I had two smaller cavities of fluid. The doctor was optimistic that they would be absorbed by themselves so he said we would scan again later and see what happens. The CT also showed that the leak they found in my sigmoid colon was closing up on its own. The doctor was not very convinced that it would do it on its own when I was in the hospital. The problem with this leak is that if it doesn't heal on its own, I will have to have another surgery. In the grand scheme of things, it would be a minor surgery, but let's be real, anything can happen when Kayleigh Quinn is involved. So we are really hoping it closes on its own.
Other than that surprise doctor's appointment, my mom tried to get me out of the house by going to the library, shopping for my redecorating project in my living room, and the pool. She went to the beach a few times (her second love), but I didn't think I was quite ready for that. Friends have come over a few times to watch shows with me and we went to two movies at the theater. Other than that, I have pretty much been at home most of the time. It's boring, but I can only handle so much right now and I am so afraid that I will pick up something and get sick again.
Then dad brought mamaw back and took mom home. So now we are hanging out for two weeks before my mom and the entire family comes for a little vacation.
So that's the update. I have a doctor's appointment on Monday with my St. Augustine GI doctor and then I have my follow-up/CT scan with my surgeon on June 15.
I just want to thank everyone for all the support and prayers over the last couple months. I really don't know where I would be without all the support I've gotten. The cards, the packages, the messages: It's all too much, but I love it. The fact that my blog was viewed over two thousand times proves that I have a lot of people that love and care about me and I thank everyone for that!
Much love to you guys and see you next week!
XOXO,
Kayleigh
